| Limited public awareness and understanding of ADRD research opportunities |
Community-informed outreach and education via modular online curriculum and local educational events enhance public awareness and knowledge, promoting direct, informed participation guided by our CAB. |
| Insufficient engagement with care partners, impacting participant recruitment and retention |
Targeted QI campaign increases proxy-chart enrollment by potential care partners, strengthening secure, personalized communication channels with care partners and promoting long-term retention and ongoing engagement in research activities. |
| Logistical and psychosocial barriers (e.g., transportation, mistrust) limiting participation in ADRD studies |
Community-based assessments and biomarker collections conducted in familiar, accessible community settings by trained nurse-led teams reduce logistical and psychosocial barriers. |
| Missed recruitment opportunities during routine clinical encounters, particularly within non-specialized care settings |
Point-of-care EHR-integrated referral system ensures research opportunities are consistently presented during regular clinical visits, including primary care, increasing referrals and research participation. |
| Community perspectives and priorities are often not reflected adequately in research agendas, affecting relevance and acceptance |
CAB involvement actively engages community members to identify research priorities, outreach content, and educational strategies, ensuring alignment with community values and improving relevance and acceptance. |
| Limited systematic evaluation of outreach and recruitment effectiveness to refine strategies and optimize resource allocation |
Regular evaluation data collection and feedback mechanisms inform iterative improvements in outreach curricula and clinical referral processes, supporting continual enhancement and optimized resource allocation. |